February is heart month! Of course our motif for our #4Eva Campaign is the gorgeous heart that Eva painted on her body! Our campaign is all about heart. But sometimes it’s literally the case. We were thrilled when Mark Wilson reached out to us, sending us a picture of himself, wearing the #4Eva heart shirt, as he celebrated his one-year heart ‘transplantiversary’ last week! Love, love , love to Mark (2.0) in this journey – and thank you for sharing your picture and anniversary with us.
We are gearing up for our annual #4Eva Campaign for organ donation and cystic fibrosis awareness – which we annually celebrate in April and May. If you give a valentine from our #4Eva collection (art cards, DVDs and of course the heart tees!) our profits will go to this outreach effort in April and May.
Stay tuned for news about what we are planning as well! Share the love! #4Eva! (more…)
BC Transplant has given a big gift to BC Teachers! 65_RedRoses is now playing in BC high schools!
Our #4Eva Volunteer Coordinator David Ng recently spoke to Maureen Mooney from BC Transplant about using the film as an educational tool, and here’s what she had to say:
HCW: Why is 65_RedRoses a tool for BC Teacher’s to use to teach students about issues around transplant?
BCT: The story of Eva Markvoort’s personal and touching journey of battling cystic fibrosis (CF) – a fatal genetic disease affecting the lungs and digestive system is documented in 65_Red Roses while she waits for a double lung transplant. This incredible film takes an unflinching look into the lives of Eva and her two online friends who are all battling CF. Students will identify with how these friends communicate on line and how the girls have become each other’s lifelines through the Internet, providing unconditional love, support and understanding long after visiting hours are over.
Our greatest hope for this documentary is that when people watch it, they feel compelled to register to be an organ donor. Several studies have suggested the timeliness of discussing organ donation with teenagers as they are attempting to obtain their drivers license. The research demonstrates evidence based practise that adolescent classroom education may increase public support for donation as the teenagers discuss organ donation with their peers and at home. Eva was on the waiting list for a second transplant when she passed away, and while everyone would have wished more years on this earth for her, Eva’s legacy is the love and inspiration she left behind. (more…)
Tiffany is a nurse and a supporter of the #4Eva Campaign. She wants to share her story, in hopes that it will inspire more people to get involved with the campaign.
My name is Tiffany Hamilton and I am a RN that had the opportunity to take care of patients with CF. One patient in particular is a girl name Sharon. She taught me to live like I was dying. Her courage and strength inspired me. She could always make me laugh: she invented a “chicken dance” that we did every night before she went to bed – she was a true character!
Sharon was the first CF patient I ever took care of. She taught me so much about CF and the importance of organ donation.
The year before she passed, she had to have a lung reduction to breathe easier. In January 2005, she got the call that they had lungs for her. She came in to get prepped and to have a chest CT.
Sadly, 20 minutes before they were about to begin, they had to cancel the surgery. The CT revealed that her heart had shifted to the right side of her chest. It was too risky. She was crushed, as were the staff and I. In March 2005, she came back into the hospital one final time.
That was the last time I got to have a conversation with her and promised to keep fighting for a cure. I visited her frequently in the ICU. When it came time to take her off the ventilator, her mother requested them to do it on the unit I worked on because we were family. Her memorial service and funeral were the hardest for me to do. Not a day goes by that I don’t think of her.
Because of her, I continue to spread the word about CF and the importance of organ donation. I will continue to fight the fight for a cure for CF. Together we will find a cure! I owe that to Sharon and everyone else with CF!
Tiffany is a nurse and a supporter of the #4Eva Campaign. She wants to share her story, in hopes that it will inspire more people to get involved with the campaign
My name is Tiffany and I’m a nurse that took care of Cystic Fibrosis (CF) patients when I graduated from nursing school. Because of the patients I took care of, CF is a cause that is very near and dear to my heart. I was very excited when I heard about the #4Eva Campaign, and the work that the team is doing for CF awareness month, however, I think that awareness should be raised all year round. I hope to one day make that happen!! I think that we can learn from the successes of campaigns like breast cancer campaigns, and hopefully build a campaign for CF awareness that is just as popular!
Having spent many years taking care of CF patients, I have many stories that have touched my heart. According to statistics, most CF patients live to the age of 36, however, many of them have been living longer. Ultimately, CF patients will need a double lung transplant – which is why I believe organ donation is a critical part of CF awareness. If we can keep spreading the word about CF awareness ad organ donation, maybe we can make a difference in 1 patient with CF and add additional years to their life!! (more…)
This year, we decided to push the #4Eva Campaign further with April being organ donation month, followed by May which happens to be Cystic Fibrosis Month – and the response has been really positive. Thank you to everyone who has been in touch with us to participate all over the world!
For me personally, and like for many people I know, I didn’t have a clue what cystic fibrosis was until I watched the film – and since watching the film, I’ve been connecting with people to see what we can do to help find a cure, raise awareness about the health services CF patients need, and efforts to improve the quality of services available to people with CF. Please join the conversation on twitter @65_RedRoses.
We are extending our sale on #4Eva campaign merchandise – the proceeds will go to a campaign to promote organ donation and CF awareness. Please use coupon code BREATHE#4EVA at check out to receive 25% off. (more…)
“As a distributor of 65_RedRoses, Hello Cool World has ensured that the campaign for organ donation and CF research continues to reach Canadians through classrooms and theatres. Their goal, to create positive social change through film and media, makes them a worthy recipient of IdeaBOOST!”
- Nimisha Mukerji, co-director of 65_REDROSES
Hello Cool World is the force behind this website, the Canadian distributor for the film, and directs the entire #4Eva Campaign so please support this project which has the potential to help the 65_RedRoses campaign get even bigger! It’s fast and free – so BOOST them now! Hello Cool World also puts all their profits into this campaign, which is volunteer run. Voting – AKA ‘Boosting’ only lasts one more week, so lets get them boosted into the lead!
Hello Cool World’s plan is to build a platform to help the creators of social change films and projects to get their work out there, that will help audiences (like you!) more easily support the causes they care about. Each campaign will be part of a larger network that can share content and audiences, amplifying the efforts for all. (more…)
Have you considered becoming a registered organ donor? I registered when I was 16 years old. I believe the expression “You can’t take it with you” also applies to your body. It’s a nice feeling knowing that when I pass on, I could save up to 50 lives. I could never have known then that one day I would need a kidney transplant myself.
The person who donated his kidney to me is a man named Stephen McClelland. He found out online that I was in end stage renal failure, and he wanted to help. We had never met. He stepped forward to donate one of his kidneys to me. It was an incredible gift Stephen gave me… Life. (more…)
If you’ve been following our blog you’ll know that April is Organ Donation Month (they call it National Donate Life Month in the U.S) and May is CF Awareness Month. Last May 65_RedRoses aired on the Oprah Winfrey Network, and they played our PSA!
Now we are an entirely volunteer-run campaign, trying to get the film and the message out to as many people as we can to support these two important causes.
We are honoured that Hot Docs (which is where 65_RedRoses launched, with Eva in attendance) has chosen our film to be part of their 20th Anniversary celebration screening series comprised of the 20 award-winning films representing the past 20 years. It screens Tuesday April 9, in Toronto at The Bloor Cinema, 6:30 pm. If you are in Toronto and can go to the screening you’ll see our amazing team of volunteers selling DVDs & tees and hopefully signing you up to our campaign. If you are not in TO, never fear, we’ll be tweeting for the cause and posting pics from the screening on Twitter and Facebook.
DO YOU WANT TO HELP US?
It’s as easy as sharing our posts and re-tweeting out tweets! If you are more ambitious you can host a screening as a fundraiser to the organ donation & CF organizations you want to support. You could organize a local #4Eva team, to table, poster and spread the word! Read on for ways you can get involved. (more…)
Friends of 65_RedRoses,
With the recent passing of our friend Meg we wanted to give you all an update on Kina. Kina’s good friend Anthony was kind enough to send us some information since at the moment she has been admitted to Cleveland Clinic. In recent months she has been in and out of hospitals in the Pittsburgh area for various reasons. While a number of unfortunate events (including a fire where she lost all her belongings) displaced Kina from her home, we are happy to hear that she is in a loving relationship and is currently engaged to her fiancé Jeremy.
She has been seeing Doctor Budev, and they are doing many tests on her to find out why her health has been declining.
As many of you in the CF community will understand (and as we see repeatedly in the film) there can be long painful stretches in the hospital. To pass the time, Kina has been writing. Here are some excerpts from a recent post:
Chronic Rejection. It’s reared its head. Really bad this time. So many words left unsaid. So many people I love and cherish are going to be hurt by this. My health is going to decline. It’s basically like having my old lungs back…. I’m not depressed. Just hurting. I had 6 good years of transplant. I have changed lives. Inspired. Aided. Created. I’ve been through hell, and yet I still smile. Those who help me. I don’t have enough words to tell you how much it means to me. I sit here listening to other patients, they gasp, cough, choke, and cry out. I’m back in the ol’ ball and chain of fighting to breathe. I will pray for everyone. Not for myself. I don’t need anything but love.
More updates to come. Sending lots of love to Kina and all the CFers out there in hospital beds. (more…)
Before you complain about mundane things like weather and traffic, consider taking a breath. Breathe in deep and feel the air go into your lungs. Imagine the oxygen nourishing your cells. Take a deep breath. This is a luxury which many people don’t have. Yesterday Meg Moore passed away from Cystic Fibrosis. She was 25 years old. Meg left behind a young son who probably will never remember how it felt to be held by his mother. (more…)