Tiffany is a nurse and a supporter of the #4Eva Campaign. She wants to share her story, in hopes that it will inspire more people to get involved with the campaign.
My name is Tiffany Hamilton and I am a RN that had the opportunity to take care of patients with CF. One patient in particular is a girl name Sharon. She taught me to live like I was dying. Her courage and strength inspired me. She could always make me laugh: she invented a “chicken dance” that we did every night before she went to bed – she was a true character!
Sharon was the first CF patient I ever took care of. She taught me so much about CF and the importance of organ donation.
The year before she passed, she had to have a lung reduction to breathe easier. In January 2005, she got the call that they had lungs for her. She came in to get prepped and to have a chest CT.
Sadly, 20 minutes before they were about to begin, they had to cancel the surgery. The CT revealed that her heart had shifted to the right side of her chest. It was too risky. She was crushed, as were the staff and I. In March 2005, she came back into the hospital one final time.
That was the last time I got to have a conversation with her and promised to keep fighting for a cure. I visited her frequently in the ICU. When it came time to take her off the ventilator, her mother requested them to do it on the unit I worked on because we were family. Her memorial service and funeral were the hardest for me to do. Not a day goes by that I don’t think of her.
Because of her, I continue to spread the word about CF and the importance of organ donation. I will continue to fight the fight for a cure for CF. Together we will find a cure! I owe that to Sharon and everyone else with CF!
Tiffany is a nurse and a supporter of the #4Eva Campaign. She wants to share her story, in hopes that it will inspire more people to get involved with the campaign
My name is Tiffany and I’m a nurse that took care of Cystic Fibrosis (CF) patients when I graduated from nursing school. Because of the patients I took care of, CF is a cause that is very near and dear to my heart. I was very excited when I heard about the #4Eva Campaign, and the work that the team is doing for CF awareness month, however, I think that awareness should be raised all year round. I hope to one day make that happen!! I think that we can learn from the successes of campaigns like breast cancer campaigns, and hopefully build a campaign for CF awareness that is just as popular!
Having spent many years taking care of CF patients, I have many stories that have touched my heart. According to statistics, most CF patients live to the age of 36, however, many of them have been living longer. Ultimately, CF patients will need a double lung transplant – which is why I believe organ donation is a critical part of CF awareness. If we can keep spreading the word about CF awareness ad organ donation, maybe we can make a difference in 1 patient with CF and add additional years to their life!! (more…)
This year, we decided to push the #4Eva Campaign further with April being organ donation month, followed by May which happens to be Cystic Fibrosis Month – and the response has been really positive. Thank you to everyone who has been in touch with us to participate all over the world!
For me personally, and like for many people I know, I didn’t have a clue what cystic fibrosis was until I watched the film – and since watching the film, I’ve been connecting with people to see what we can do to help find a cure, raise awareness about the health services CF patients need, and efforts to improve the quality of services available to people with CF. Please join the conversation on twitter @65_RedRoses.
We are extending our sale on #4Eva campaign merchandise – the proceeds will go to a campaign to promote organ donation and CF awareness. Please use coupon code BREATHE#4EVA at check out to receive 25% off. (more…)
“As a distributor of 65_RedRoses, Hello Cool World has ensured that the campaign for organ donation and CF research continues to reach Canadians through classrooms and theatres. Their goal, to create positive social change through film and media, makes them a worthy recipient of IdeaBOOST!”
- Nimisha Mukerji, co-director of 65_REDROSES
Hello Cool World is the force behind this website, the Canadian distributor for the film, and directs the entire #4Eva Campaign so please support this project which has the potential to help the 65_RedRoses campaign get even bigger! It’s fast and free – so BOOST them now! Hello Cool World also puts all their profits into this campaign, which is volunteer run. Voting – AKA ‘Boosting’ only lasts one more week, so lets get them boosted into the lead!
Hello Cool World’s plan is to build a platform to help the creators of social change films and projects to get their work out there, that will help audiences (like you!) more easily support the causes they care about. Each campaign will be part of a larger network that can share content and audiences, amplifying the efforts for all. (more…)
Have you considered becoming a registered organ donor? I registered when I was 16 years old. I believe the expression “You can’t take it with you” also applies to your body. It’s a nice feeling knowing that when I pass on, I could save up to 50 lives. I could never have known then that one day I would need a kidney transplant myself.
The person who donated his kidney to me is a man named Stephen McClelland. He found out online that I was in end stage renal failure, and he wanted to help. We had never met. He stepped forward to donate one of his kidneys to me. It was an incredible gift Stephen gave me… Life. (more…)
If you’ve been following our blog you’ll know that April is Organ Donation Month (they call it National Donate Life Month in the U.S) and May is CF Awareness Month. Last May 65_RedRoses aired on the Oprah Winfrey Network, and they played our PSA!
Now we are an entirely volunteer-run campaign, trying to get the film and the message out to as many people as we can to support these two important causes.
We are honoured that Hot Docs (which is where 65_RedRoses launched, with Eva in attendance) has chosen our film to be part of their 20th Anniversary celebration screening series comprised of the 20 award-winning films representing the past 20 years. It screens Tuesday April 9, in Toronto at The Bloor Cinema, 6:30 pm. If you are in Toronto and can go to the screening you’ll see our amazing team of volunteers selling DVDs & tees and hopefully signing you up to our campaign. If you are not in TO, never fear, we’ll be tweeting for the cause and posting pics from the screening on Twitter and Facebook.
DO YOU WANT TO HELP US?
It’s as easy as sharing our posts and re-tweeting out tweets! If you are more ambitious you can host a screening as a fundraiser to the organ donation & CF organizations you want to support. You could organize a local #4Eva team, to table, poster and spread the word! Read on for ways you can get involved. (more…)
Friends of 65_RedRoses,
With the recent passing of our friend Meg we wanted to give you all an update on Kina. Kina’s good friend Anthony was kind enough to send us some information since at the moment she has been admitted to Cleveland Clinic. In recent months she has been in and out of hospitals in the Pittsburgh area for various reasons. While a number of unfortunate events (including a fire where she lost all her belongings) displaced Kina from her home, we are happy to hear that she is in a loving relationship and is currently engaged to her fiancé Jeremy.
She has been seeing Doctor Budev, and they are doing many tests on her to find out why her health has been declining.
As many of you in the CF community will understand (and as we see repeatedly in the film) there can be long painful stretches in the hospital. To pass the time, Kina has been writing. Here are some excerpts from a recent post:
Chronic Rejection. It’s reared its head. Really bad this time. So many words left unsaid. So many people I love and cherish are going to be hurt by this. My health is going to decline. It’s basically like having my old lungs back…. I’m not depressed. Just hurting. I had 6 good years of transplant. I have changed lives. Inspired. Aided. Created. I’ve been through hell, and yet I still smile. Those who help me. I don’t have enough words to tell you how much it means to me. I sit here listening to other patients, they gasp, cough, choke, and cry out. I’m back in the ol’ ball and chain of fighting to breathe. I will pray for everyone. Not for myself. I don’t need anything but love.
More updates to come. Sending lots of love to Kina and all the CFers out there in hospital beds. (more…)
Before you complain about mundane things like weather and traffic, consider taking a breath. Breathe in deep and feel the air go into your lungs. Imagine the oxygen nourishing your cells. Take a deep breath. This is a luxury which many people don’t have. Yesterday Meg Moore passed away from Cystic Fibrosis. She was 25 years old. Meg left behind a young son who probably will never remember how it felt to be held by his mother. (more…)
Please Share our video made of clips from the DVD extras, in support of Organ Donation for the Month of April. (National Donate Life Month in the US!)
Spring is finally upon us – and we are gearing up for Organ Donation Month activities, all during April! All our #4Eva items (DVDs, T’s Art Cards) are 25% off our online store with the promo code: organdonor#4Eva
I’m quite excited to be working on the #4Eva Campaign this year. One personal reason – A few weeks ago, a friend of mine passed away suddenly, but had been an advocate for organ donation, which his family made a point to recognize in the midst of the tragedy. My friend who passed was an incredibly generous human being – one of those people in your life that lacks any malice in their spirit, but instead spreads joy and happiness to those around him. I was really moved when I heard that he made it a point to spread the word about organ donation during his short life, as it revealed that his generosity extends beyond the end of his life. Although I never personally met Eva, her message of love and giving resonates so much with my relationship with my friend, whose life emanated love, joy, and generosity. It’s a message that I think is at the heart of the #4Eva Campaign – and a message worth spreading!
My hopes for Organ Donation Month are that we can inspire people around us to want to be involved with the campaign, and build momentum for a movement for organ donation. (more…)
So here we are. Three years ago you left us but I can honestly say that not a day goes by without you. That’s the power of all that energy you put into the world: small drops in an ocean create a ripple effect. We find you in the success of the “Live Life, Pass It On” campaign which, thanks to your artwork, continues to create awareness about the need for organ donation. People see your photo on their hydro bills, driver’s license forms, public transit and on print ads throughout the city. They are reminded that they too can make a positive difference in someone else’s life by becoming an organ donor.
Through social media, we hear stories about your impact on the CF community. The movement you started online is still growing, and new members are always finding their way to us on facebook and twitter. And where you left off with your blog, others took over. Your voice is now echoed through thousands of voices, communicating with us through a global online network. They share their CF experiences, their fundraising efforts and the many impacts (small and big) that you made on their lives. Recently I was at BC Children’s Hospital and I saw a mother and her two children looking at the 65 roses painting you inspired. Those beautiful, colorful images bring joy and comfort to those who need it most.